Thursday, July 28, 2016

And done..


Today started out with me going to sleep. I always have difficulty sleeping the night before Pip's surgeries. Who wouldn't? I finally went to sleep after midnight, just to be woken up by Pip at 230 am. Was she anxious? Or restless? Who knows. She went back to sleep fairly quickly and I went back as well. 415 the alarm went off. The hubs and I got up and ready, then woke her up by 430. By 445 we were in the car and heading to Pensacola.



Check-in went fairly quickly, and as always she went above and beyond to make Pip a "princess bracelet" and let Kitty have one, too. We got to Pre-op holding and I saw one of my old PICU nurses. She must've spread the word, because a few minutes later the nurse I begged to stay with me during Pip's delivery was walking into the room. I got seriously teary eyed, it's crazy. We had to retell our story to the anesthesiologist. And we waited. And waited. Like always, everyone was waiting on Dr. Ferris, and like always he's last to show. Which is fine by me. As long as he does what he does great and no complications, let him be last to see us.

They gave her versed again, but this time we didn't have a lot of time before they came back to get her. She went with the nurse instead in the crib, and by the time we followed the nurse with the crib she was already gone through the doors to the OR. We went to the waiting room to wait for the call that they got started, then headed down to grab breakfast. 




Another hour and a half later, they called to take us back to her in recovery. Once there the nurse said she had our discharge paperwork. Wait.. Discharge? As in, go home with a new operated on child? Uhh... So Dr. Ferris came by and we talked. Bone looks great, when he did the arthrogram the hip socket looks to be forming great still. I was relieved. He also must know us pretty well, because he said the hardware was being cleaned up so we could have it. 




Discharged before noon, and not really a word about her leg. She was more worried about her IV "boo-boo" like usual. We left Pensacola and came back to Crestview, stopping at Wal-Mart  to put in her script and wait for it. We took turns carrying her around the store, where she asked for cookies, to walk, and to go potty. She only got the cookie request fulfilled. Way too soon to try to let her walk, and I was unsure about the pottying there, if she asks again while we're home we'll try it.

We came home and ate, then took a 3 hour nap - getting up at 6pm. Pip's in her bean bag chair now, playing with legos. I had to give her a dose of her heavy meds because I don't think Tylenol will be cutting it right now. She'll be bouncing back in no time. Just gotta keep the dressing on her leg on for 5 days, so we'll be living in our footed pjs until then. He'll see her back in two weeks for an Xray.

It's only uphill from here, UP.



The hardware. :)


Monday, July 25, 2016

Seriously silly.


Today we had Pip's pre-op appointment. It went smoothly, they were shocked when we told them about her tooth.

We got our time, and when to check in. 6am check in, 8am surgery. We should only be staying Thursday night, so that should be easy. No food or drink after midnight but they changed the clear fluids rule: she can have clear fluids up to two hours prior.. interesting.

I think we're opting to drive from home Thursday morning and just sleep in the hospital room Thursday night with her. We usually stay at the Ronald McDonald House, and I put in a request, but the hubs said it will be cheaper and less tasking on Friday.

This way the only day I'm missing for work is Thursday. So that's a positive. And we only need someone to look after the dogs Thursday and Friday until we get home. Another positive.

I'm still getting nervous as each day comes to a close. But I keep reminding myself it's a shorter procedure and an easier one than cutting her femur and placing it was.

The nurse also called today. She asked why it's coming out so soon.. well let's see, her bone is completely healed.. and she's getting too tall for it. It's crazy to think in only 6 months she's too tall for it, and her bone is completely healed.

Wish us luck, and hope she's up and moving quickly again. Next update will be after surgery!



Wednesday, July 13, 2016

There's always tomorrow..


Today was.. today. It started out okay. Pip has decided to start self potty training herself last week. What kid does that? Couple of weeks ago she half went poop at babchi's house. Then over the holiday weekend while we were in Georgia, visiting my brother and sister in law, she decided she wanted to potty at a restaurant. Thinking she wouldn't go, I humored her and took her to the potty.

She went. Then she went poop at their house a day later! Once back home she's been going, so I decided to upgrade to underwear. Only three accidents since starting that. Go Pip!

Back to today.. we took a walk down main St and then went to the park to walk there as well. Well, on main St she was in the stroller at the park I thought she could walk with us since it wasn't going to be long. We also had cups of water, which on the way back to the car I let her carry them.

Mistakes happen. I get that. I really do. But it doesn't make you feel any less horrible. It doesn't fix what happened. It doesn't make you feel any less adequate as a parent. Pip fell while walking and carrying the cups. And at first I thought she was okay. I helped her up and then I saw it. Blood. Bubbling at her bottom lip. So I scooped her up, left the cups and started toward the car when the hubs and boy were.

Half way there we were both covered in her blood. So I yelled for him to get the wipes. I half jogged up the hill to meet him at the bench. Sat her down and started wiping her mouth to find the source. Hubs said it was the corner of her lip, and the bleeding stopped so the mommy freak out mode calmed.

Until I got her into her seat and saw it. There staring back at me, showing my failure as a parent, was a gnarly blackish hole where her perfect little canine tooth should be still growing in. I got weak and sick to my stomach. This was no cut on the lip. She was literally missing a tooth that hasn't even grown in all the way yet. So now not only does my daughter had a bad hip, her mouth is all banged up too.

We went home to try to get her to a dentist. I called her pediatrician, they transferred me to their dentist. Who isn't accepting new patients until next month, so they gave me a number. Who doesn't see younger patients anymore, so they told me to call our insurance. Who gave me a number to get our list, which the closest one is 40 minutes away. I'm okay with that drive, as her orthopedic is there too. But they said that there was one in town that should take us, so I googled the place and called. Which, funny story, was the SAME PLACE I called first. I was mad. They suggested to take her to the ER so we did. Just to get antibiotics and to answer a couple of my questions, but I'm okay with that.

Pip? She's acting normal. Didn't need any pain meds. I think I'm more worked up about her baby tooth than she is. Tomorrow is another day. 15 days until surgery.

Saturday, July 2, 2016

Rollercoasters



In the two groups that I'm part of on facebook for hip dysplasia, I see new moms almost daily. I was that new mom. Before finding out what was wrong with Pip, I never knew about hip dysplasia. I didn't think I had to worry about it. Then, it did happen. And I was that scared new mom seeking answers. Wanting to know. I still am that scared mom. I shared Pip's and our story once again this morning to a new mom. Ours was a late diagnosis, but not as late as some. It was too late, or maybe it was too severe, for the pavlik harness. Our only option at first was surgery and a cast. And I remember thinking that would be the only one. Hoping that would be the only treatment she needed. Then devastated when it wasn't. Then even heartbroken when we found out the brace did nothing to help and she needed another surgery.

Now, now we sit here and hope again that once this plate is removed, that's it. It'll be done.

To that new mom expierencing this for the first time.. Breathe. It's just a rollercoaster.

Some babies need minimal treatments, some need more extensive. It's a rollercoaster of a ride and you really are going into it blind. But, like most rollercoasters, the scary parts tend to be over quickly.. but may sneak back up on you later on in the ride.

Good luck mama, stay strong. Our hipsters are just that. Strong.

Saturday, June 25, 2016

This chapter might be just about over...


Yesterday we went and saw the doctor to set up the appointment to get Pip's plate taken out. I had a car full of people - pop, babchi and Alek decided to tag along. When we finally got back to the room (30 minutes late), we waited for them to come get us for X-rays.

Pip wasn't too happy about "getting her picture taken". She fought me and the tech. But after the first one was taken she relaxed and stopped fighting. We looked at the X-ray on our way back to the room.. to me, everything still looked normal!

Once back to the room we maybe waited another ten or so minutes until Dr. Ferris came in. He had her walk/run down the back hallway and then it came to discussing removal. I don't know if he was being funny or thought I thought he could do it in office (I know it required another surgery) but he told me it'd be done in a few weeks, nothing later. He also said that she's outgrowing the plate. That's a scary yet reassuring thought. My once 3lb 3oz little girl isn't so little anymore. 

He left and the scheduler came in. We went over dates and I opted for the earliest - July 28th. Giving her plenty of time to be moveable more easily when her older brother starts kindergarten a few weeks later. Her pre-op is the 25th. I left the appointment feeling quite confident that this will be her last surgery.

Other than that, lil man had his vpk graduation earlier this month, and I'm trying to wrap my head around our new adventure: school age years. It makes me quite sad, also to think in a few years Lainee will be following suit. We have a busy July coming up. But probably not busy enough to distract me from the upcoming surgery.

I know it'll go easier - hey, he's not cutting bone this time! And it'll probably be her quickest surgery to date. But she'll still be under, she will still be in pain. He assures me that she'll be up faster this time though. And I'm fairly certain she will be too. She bounces back rather quickly.



Wednesday, March 23, 2016

Still chugging.


It's been awhile.. Pip is doing awesome still. Her incision has healed very nicely, and she milks the "boo-boo" periodically. I'm sure it does ache or feel weird in its own way but it seems like it flares up when she gets in trouble.

She's been walking nicely every since the appointment. At first I was getting very concerned because her left foot would be turned out but it seems to be correcting itself.

She still limps a bit, and I'm sure watching her people think she's a first time walker. This is one of those things that will never be noticed. Which I guess it good.. but also bad? I know going through life explaining stuff is difficult and annoying. I get looks a lot because of the scars on on my neck and arm. So I'm hoping Pip won't have to explain later on.

We recently returned from a weekend trip. And I've started taking the bink expect for naps and bedtime. So far it's been decent once she realizes she doesn't need it. Which is about an hour after I take it. That first hour is spent repeatedly asking for it and whining. My goal is to completely take it after these pins and stuff is removed. She'll be close to 3.. but I don't know if I should take that crutch away just yet..

Potty training is on my list too. I wanted to start that this week as well but I'm trying to find a schedule. I feel quite.. overwhelmed. There's so much I want to do and trying to figure out when to do it is hard. I only have so many hours in the day.. and there is certain times I need to be somewhere with school and work. And then there is cleaning, cooking and working out.. and vegging out. Because we all need to relax sometimes!

So far my stress is low. Next appointment is April 12th.


Friday, March 4, 2016

Be ~ a ~ u ~ ti ~ ful!

Tuesday we went in for a post op checkup. After a run around with the insurance company, I gladly found out that for this kind of procedure she will be covered for 90 days post op as long as it's the same area he's looking at. So that took a lot of stress off my shoulders.

This was by far the longest wait we ever had to endure. But we were last appointment. We had xrays done and apparently her leg is looking amazing! There's already bone growth! He also wanted to see her walk so he pretty much chased her in his chair while I held her hands to help her walk. We go back in six weeks.

Speaking of walking.. I guess him chasing her did something because now she's walking around with no help most of the time. She's pushing all my expectations. And to think I wanted her in a cast. Ha.

The Dr is even hoping this will be her last major surgery. Good to know that he's with us instead of saying it's unclear. It's still really hard to look at these xrays and know it's your baby's leg. Really hard.