Wednesday, March 23, 2016

Still chugging.


It's been awhile.. Pip is doing awesome still. Her incision has healed very nicely, and she milks the "boo-boo" periodically. I'm sure it does ache or feel weird in its own way but it seems like it flares up when she gets in trouble.

She's been walking nicely every since the appointment. At first I was getting very concerned because her left foot would be turned out but it seems to be correcting itself.

She still limps a bit, and I'm sure watching her people think she's a first time walker. This is one of those things that will never be noticed. Which I guess it good.. but also bad? I know going through life explaining stuff is difficult and annoying. I get looks a lot because of the scars on on my neck and arm. So I'm hoping Pip won't have to explain later on.

We recently returned from a weekend trip. And I've started taking the bink expect for naps and bedtime. So far it's been decent once she realizes she doesn't need it. Which is about an hour after I take it. That first hour is spent repeatedly asking for it and whining. My goal is to completely take it after these pins and stuff is removed. She'll be close to 3.. but I don't know if I should take that crutch away just yet..

Potty training is on my list too. I wanted to start that this week as well but I'm trying to find a schedule. I feel quite.. overwhelmed. There's so much I want to do and trying to figure out when to do it is hard. I only have so many hours in the day.. and there is certain times I need to be somewhere with school and work. And then there is cleaning, cooking and working out.. and vegging out. Because we all need to relax sometimes!

So far my stress is low. Next appointment is April 12th.


Friday, March 4, 2016

Be ~ a ~ u ~ ti ~ ful!

Tuesday we went in for a post op checkup. After a run around with the insurance company, I gladly found out that for this kind of procedure she will be covered for 90 days post op as long as it's the same area he's looking at. So that took a lot of stress off my shoulders.

This was by far the longest wait we ever had to endure. But we were last appointment. We had xrays done and apparently her leg is looking amazing! There's already bone growth! He also wanted to see her walk so he pretty much chased her in his chair while I held her hands to help her walk. We go back in six weeks.

Speaking of walking.. I guess him chasing her did something because now she's walking around with no help most of the time. She's pushing all my expectations. And to think I wanted her in a cast. Ha.

The Dr is even hoping this will be her last major surgery. Good to know that he's with us instead of saying it's unclear. It's still really hard to look at these xrays and know it's your baby's leg. Really hard.


Wednesday, February 24, 2016

Better than nothing..



So we've gone from crawling to walking while holding onto furniture. Amazingly... Scary. I'm still giving her the hydrocodone at bedtime, to help her relax from the day's events. But during the day I'll only give her Tylenol at nap unless she's particularly fussing over her leg.

It looks like it's healing quite nicely. Scabbing in most areas, but like it should. Her stitches, one end dissolved(we're going with that, I don't know if she pulled it out), the other.. probably got yanked. Hopefully just the tip and not the whole thing, but that part of her incision has been leaking(for lack of a better word) today. Not enough to make me alarmed but still enough to notice.

Carrying her is strange. If you hold her leg it feels like things are shifting around in there.. I hate it. Part of me(the part that should be beat with a stick) keeps thinking it's her bone. Hubs reassures me that it's probably her muscle moving against the plate and screws (which is so comforting, right?).. I'm sure if it were her bone she'd be in a great deal of pain. But she has dealt with pain thus far rather nicely.

Tuesday we'll be going in for an appointment. Probably an Xray. I'm hoping to snag a pic of it. I'm curious to see what her leg looks like now. Looking back, over the years - especially before my children, I never thought I'd face things like this. But I suppose that's human nature, right? Everything will be perfect until it's not. It won't happen to me.

Lots. Lots has happened to me in the past 5 years. Lots has happened to Pip in just two years. It's crazy. I know no one asks for things to happen, and I know it could be a lot worse. Alek could of had a serious heart problem. I could have died. Pip could face many years of surgeries. We often forget that we need to slow down and enjoy the little ifs, whens, and coulds. I'm guilty of not living in the now. I'm constantly thinking of the future and dwelling on the past. 

For if we dwell in the past when we should be present now, we can't enjoy our future, now could we?


Tuesday, February 16, 2016

Touché Tuesday

So, when you think everything's going great.. And then you hit that wall. That proverbial wall. Pip was up all hours last night screaming.

Like, screaming. I couldn't calm her down. I had to give her Tylenol. This whole week she'd been going to bed with one dose of the hydrocodone and nothing until the next day!

To make matters worse, the absolute horrible tights ran through my head. Did a screw pop out? Did the plate shift? I was quite close to piling her into the car and driving to the ER. But I removed her bandages and she calmed for the most part. And today she's acting normal again.

Also, Alek woke up in the middle of the night crying about his legs. That was another trip down the hallway and I'm afraid to say it.. we're out of Tylenol. He can take ibuprofen, Pip can't. Doctors orders.

Our routine is getting back to normal. We took Alek to school and went shopping then went back to get him. She sat in a chair while I cleaned the house today. Let's just hope our night will be like before and not like last night.


Monday, February 15, 2016

One week out.


A week down. Has it really been a week? Wow. Saturday we finally took Pip out of the house. Dropping both kiddos off at the in laws so we could go have a nice Valentine's day date. Originally we were going to drop Pip off in a cast. But, oh yeah, she doesn't have one!

Dinner and Deadpool was amazing, as was sleeping until nearly 9 am. Finally we went to get the kids and tried to go furniture shopping. But nothing was open so we saved that for today.

Pip did great moving around a bunch. She also, has been moving some on her own. Thursday night she rolled off the bean bag chair and got up onto her knees so daddy could pick her up. Yesterday she got off the bean bag chair and crawled over to me while I was on the couch. And today.. well. She crawled from her bed all the way to the front door.

But I've also had to change her bandages quite a few times in the past week. Highly annoying. The tape keeps getting stuck to get clothes and pulling up. Hoping to make it until her Dr appointment.

I'm sure she'll be walking real soon. She's amazing.

Wednesday, February 10, 2016

What's this? Day 3 post surgery.


Surgery took 3 hours on Monday. On the way back to her recovery room hubs and I seriously were betting on if she'd be in a cast or not.

Spoiler: no cast! What!? How in the world am I going to pick up my child that doesn't have a cast? I was banking on a cast.. a cast would've made this a bit easier. We know casts.


Got to her room and the nurses immediately wanted to get her up and me to hold her. I immediately regretted it. She cried the whole time until she was in my arms. I cried, too. I told them I didn't want to hold her again until tubes were removed.

I also got her to eat some pudding and drink some Apple juice. Yeah, so, thirty minutes later it all came back up. Kinda scary since she was on her back but luckily I was there. We got her cleaned up between me and the nurses.


Monday night I took Lainee duty. I slept in the chair for a bit, then on the couch. Antibiotics at midnight caused the alarm to go off at one. We were both up until two, then back up at six thirty. Starting day two was hopeful.


She watched her tab for a bit off and on throughout the day. So glad we bought it for her.


Anytime the nurse did something or we did something, she did this. Faked sleep to hopefully have us go away. Even while she was trying to eat.. drama.

The only person she was wanting to talk to was the PA. She kept wanting to show her what was on her tab. She told us that, after consulting with the doctor, some of the tubes could come out. Pip was quite pleased. The doctor stopped by to check on her finally around 6, he said everything was pointing to leaving as planned.

The hubs had that night's Lainee duty, while I went back to the Ronald McDonald house and showered and slept in a comfy bed. I got my wake up call around right 8 and he said that we're looking at discharging soon, the PA was already by.


I cleaned up our room and made my way to the hospital. About an hour later we were leaving. Lainee barely fussed when I put her pjs on (I was prepared for a cast, so all I brought was a dress and two shirts depending on temperature). And wanted daddy to get her up. Which was great. The car ride home she did great, too. Minimal fussing.


I think Pip really needed to be home. She's much more relaxed and sleeping a hell of a lot better. Figuring out where to put her though is a bit tough. We're resulting to the bean bag chair for right now. And she sat in the high chair with no problems. She's even back to sleeping on her left side.. The pressure must feel good? The swelling will hopefully go away soon, and she'll be more inclined to its moving her. She's even "helping" me change her diaper by pushing up enough on her right leg so I can push the diaper under her. She used to lift with both, so this is a big help.

Looking forward to her pain going away and her to be up again. It'll be a bit before that happens, but it'll choke soon enough. And like hubs said, there no cast.. I can go on with potty training when she's walking again. 

Monday, February 8, 2016

The day we dreaded..




This morning started with me falling asleep.. just to wake back up at 2 hours later then again 6 minutes before the alarm went off. Pip fussed most of the morning, groggy and not knowing what was going on. Got to the check in, got to the pre-op waiting room with still an hour and a half to wait.

They gave her some versed about a half hour before they were going to take her. Hubs and I got a few giggles out of that. She'd just sit there with her mouth open, staring at us or messing with my hair. She was relaxed at least. Finally time came and the nurse gave her her phone to watch Mickey mouse on as she rolled her away.

About a half hour ago, they called to say they had started surgery and she was doing fine. When we got to the waiting room, I started crying.. some lady got up from her chair and brought me tissues, shows there's still good out here.

Now, we wait. I'm really not looking forward to seeing her in a few hours.